Macarena Lizama

Ejecutive director

UC Down Syndrome Center

Chile

44 profile visitsSpeaker

About

I am an Associate Professor in the Pediatrics Division of the Faculty of Medicine at the Pontificia Universidad Catolica de Chile, and the founder and Executive Director of the Down Syndrome Center, which belongs to the same institution.

I trained as a physician and specialized in Pediatrics at Pontificia Universidad Catolica de Chile, where I have pursued my career as a specialist clinician in complex care. Since 2006, I have been shaping the Health Follow-up Program for children and adolescents with Down syndrome, as part of the Unit for Children and Adolescents with Special Health Needs.

This program currently monitors over 1800 children and adolescents with Down syndrome nationwide and is led by a team consisting of 5 pediatricians and 1 nurse. Over the years, I have conducted clinical research in the field of healthcare for children with Down syndrome.

In 2012, I developed the project for an interdisciplinary center, composed of academics from various faculties of our University, which materialized in the establishment of the Centro UC sindrome de Down [Down Syndrome Center]. I have been leading this center since its inception, and it has become a national and Latin American reference in Down syndrome-related topics, covering physical and mental health, as well as education, cognitive development, and psychosocial aspects.

At the Down syndrome Center, I lead a team of 22 professionals from the fields of health, psychology, education, arts, and social sciences. Together, we pursue interdisciplinary research lines focused on Down syndrome.

My organisation

UC Down Syndrome Center

http://www.centroucdown.uc.cl

The Down Syndrome center UC, from Pontificia Universidad Catolica de Chile, was founded in October 2014 by the faculties of Medicine, Engineering, Biological Sciences, Arts, Education, the UC Sports unit and DUOC UC.

From that date until now we are physically working at our headquarters located at Campus Oriente UC, which has had three expansions, the first in 2016 with the installation of a container intended for an educational-technological room, the year 2019 with the expansion of a waiting place for families located in the garden space of our headquarters and the year 2020 with the remodeling of the adjoining house, allocating spaces to work rooms and the Simulated House, today named in honor of our recently deceased deputy director Francisco Bozinovic Kusevic (06/06/1959-†01/01/2023). Over the years, our Center has focused on improving the quality of life of people with Down syndrome, an objective that has challenged us from the various areas of our work, both in connection with the community, in training to different professionals and in the development of lines of research around the issues that affect the lives of people with this condition.

The fundamental mission of the UC Down Syndrome Center is to improve the quality of life of people with Down Syndrome, by promoting knowledge in the training of expert professionals, providing tools and training to people with Down Syndrome and their families, to facilitate the maximum development of their capabilities and inclusion in our society with dignity and respect, recognizing as a characteristic of the Center, the guiding and ethical contribution of the Catholic faith in all its activities.

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Additional questions

Title (Academic/Diplomatic/Aristocratic/Political)

Associate Professor

Pronouns

she/her

Inclusive Education

Technical and Vocational Education and TrainingLifelong LearningPre-School and Early Childhood Intervention

At #ZeroCon24, I am looking for...

Financing/InvestmentIncrease expertise in accessibility and inclusionInvitations to international conferencesNetworkingProject CooperationsResearch Cooperations

At #ZeroCon24, I am offering...

Increase expertise in accessibility and inclusionNetworkingProject CooperationsResearch Cooperations

Speaker sessions (1)

Thursday, 22 February 2024

11:00 - 12:20

Universally applicable early childhood interventions

Format:Pre-recorded
Track:
Location: M3
  • Focus: Intellectual and Psychosocial disabilities
  • Early-childhood intervention
  • English captions | International Sign

Discover inclusive early child interventions, like a video guidance, an inclusive kindergarten, customized Down syndrome support, tactile play kits, and a cross-ministry coordination policy.

Organisation